Extubation Is Not My Favorite

I am fortunate enough to have a sleep space here at Children's while Jack is in the CICU. It's in a different building, but I can get to Jack in less than 5 minutes if I ever had to.. and for the most part he is sedated and sleeping. I feel like I actually slept and got rest after all the stress from yesterday. So I woke up this morning, showered, renewed my sleep space key and went up to hang with Jack.

I met his nurse, Deb, and she said he slept all night and that they'd be taking his breathing tube out in the morning. While I was talking to Deb, the attending came in and said it was time to take the tube out. While they did their thing and started fussing with his meds and tubes, Jack's face began to contort. He furrowed his brow, opened his mouth to cry but no sound came out. He started to squirm and reach his arms out. It started out with the attending, a respiratory nurse and Deb.. and as the seconds passed, more alarms went off and more and more people began to flood the room. Next thing I know, the tube is out and he let out a raspy, gurgle cry. He started thrashing his arms and legs and 2 or 3 nurses were holding down limbs in an attempt to get him to calm down. His sats went down and stayed down.. all of a sudden, in a room full of people, I felt alone. I was standing at the end of his bed, but it felt like he was a football field away. Then out of the corner of my eye, I saw Dr. Ronai. She came over and rubbed my back and I felt the tears well up. She assured me he was OK and that it was normal for them to wake up angry. They gave him some more medicine to keep him comfortable and sleepy and he drifted back to sleep with some sugar water and a binky.

Jeremy's cousins Rene and Jeanne drove up here from Connecticut just to visit Jack and I! It was so nice to have visitors and they get bonus points for brining me a giant coffee and treats. Just having familiar faces around and a couple a good laughs was so nice after all the chaos that happened moments before. So thank you ladies!!! You made our day!

He will get to eat in a couple hours. His nurse is going to call me when he is ready. For now, they want his room quiet so he can rest, so I am here in the sleep space. It's kind of like being back in college.. except I never had a single. :) And my door room never had a breast pump sitting outside it's door.

That's all for now. No new pictures. We were both a little traumatized after the breathing tube business. If I get to feed and hold him later, I will def have plenty of pictures to post. so stay tuned!

xo
Marissa

This is just an older video of Jack chatting and laughing

He's always a happy guy in the morning.