Jack, like many cardiac babies, has to get a shot called Synagis. It's suppose to prevent him from getting RSV and other upper respiratory illnesses that are floating around during cold and flu season. If Jack were to get RSV, he could end up being hospitalized as it could quite possibly kill him.
Unfortunately for us and so many other heart families, insurance companies do not like to cover this potentially life saving shot.. Why you may ask? Because it's REALLY expensive. How expensive? We just received our bill for the first 2 rounds.. $4174.30 and we still have 1 or 2 more rounds to go. And I thought the most expensive shot I'd have to pay for was at a bar in Boston..
It's January and we are already more than half way to reaching our deductible.. Oh but wait. We received a letter in the mail from the good old insurance company informing us that Boston Children's Hospital will no longer be in our network. If we'd like to keep Jack there to continue to see the best cardiologists in the greatest children's hospital in the world, our deductible DOUBLES to a ridiculous amount of money that we can ill afford.
I've been walking around in a state of constant panic. I find myself with a never ending knot in my stomach connected to a lump in my throat.. Holding back tears from the overwhelming stress and uncertainty of what we are going to do and how we are going to keep our heads above water. It's difficult enough to have a sick child and having to worry about their health and well being... No parent should ever have to worry about being able to afford the care their child desperately needs. Jack deserves nothing but the best.. And we are determined to keep him at BCH, no matter what it takes.
