Friday, October 2, 2015

186 days...

...until Jacks next appointment at Children's! 

We loaded the kids in the car at 6:15 this morning to check into Children's at 7:30 this morning. Evie was such a champ. We talked about what we had to do all week.. 

Me: When do we have to wake up on Firday?
Evie: Very early!
Me: and where do we have to take Jack Jack?
Evie: to the hopspital (aka the hospital)
Me: and what do they have to check?
Evie: Jack Jacks heart. Because he has a big booboo. 

So off we went!
Evie buckled in, ready to go. 
Jack Jack buckled in, snuggled in.. Ready to rock.

We got all checked in and parked it in the waiting room. This is the first time we took Evie along with us for a cardiology appointment. When she comes to Jacks appointments at the pediatricians office, she experiences some serious anxiety and immediately wants to leave. She was a little on edge when we got to the waiting room, but I came prepared with books, crayons toys and fruit. She also enjoyed the cool encased train set in the middle of the waiting area.
Breakfast time!

Chop choo!

We got called in for his EKG first.. And he did a great job! He fussed a little, but you would too if they stuck a bunch of uncomfortable stickers all over your chest only to rip them off 2 seconds later!! 
Rocking the tiny Johnny.

Reading her new Paw Patrol book. 

After a brief return to the waiting room, we were called in for his echo. I was so afraid they were going to have to sedate him but he actually did incredibly well! Again, he got a little fussy after a while.. But for an 8 month old, I think he was very pleasant.. He loved the echo tech! But he loves all the pretty girls. Such a flirt..

Taking a little break during the echo 

Thank goodness for clip dress dolls!!

Trying to be serious..

It's just not his thing!! 

Puffies and Mickey Mouse clubhouse.. What could be better?

We met Dr. Ronai's replacement.. Dr. Sunil Ghelani. He is very nice and he loved Jack. He was very playful with him and very kind to us. He also commented on how Jack is probably the biggest (weight wise) cardiac kid he's seen. My big chubby boy!!! Dr. Tworetzky came in and said Jack looks great and that we don't have to go back for 6 months. It's amazing to think we went from going for appointments every week to 6 months! Amazing. Dr. T also talked to us about how after the Glenn is the honeymoon stage.. And as he begins to move more and walk and run we will start to see the blue lips and skin again, we will see his o2 says start to drop again.. And as those things happen, they will determine when the right time will be to do the next surgery, the Fontan. They don't typically do it before 2 and no later than 3. 

For now, we will enjoy the honeymoon phase. Every. Last. Second. 

The best big sister to her baby Jack Jack.