We had been having trouble getting a good reading on Jack's O2 sats at home. The probes that we attach to his foot are next to impossible to get a solid read.. we have to wrap it around his foot, then unwrap it and try his other foot. It's incredibly frustrating. I texted Dr. Ronai about it and she said she'd get us new ones.. and she very discreetly delivered. I guess these probes are a hot commodity.
Dr. Ronai and Dr. T were VERY happy with Jack. His O2 sats were 80, his color looked good and they were very impressed with his weight. So much so that we don't go back for another 2 weeks for his next appointment. At that point they will check his sats and weight and will either 1) schedule surgery for soon after that appointment (which is what I think Dr. Ronai is leaning towards) or 2) "kick the ball down the field a little" as Dr. T put it and give him another 2 weeks. All I can say is that it was so nice to hear all positive things for once.
On the drive home from the hospital, all I could think about was how thankful I am for so much...
I am so thankful for Dr, Ronai and Dr. T for doing what they do and doing it so well. They are committed to making my son better.. they aren't just taking care of him but they care FOR him. Which makes this entire experience so much more personal.
I am thankful for Jack being so strong and amazing through all of this. He's dealt with more in his 3 months on this planet than some people have to deal with their entire lives.. and yet he is rocking this CHD thing.
I am thankful for Jeremy for taking on this journey with me and taking a chance on Jack. When I can't take it any more, he takes it for me.. and vice versa. We are a team, and I love him so much for that. It's not easy, and it's not perfect but I think we are doing OK.
I am incredibly thankful for our amazing, supportive friends and family. They continuously go above and beyond to make our lives a little easier or to show their love and support. I have so many examples of this, I don't know where to start..
My sister Lynne and niece Gabby are frequent visitors and are always so thoughtful, helpful and fun. Last week they brought a delicious dinner and dessert.. and Lynne stayed here late to help me with a very rough bedtime.
Auntie Carole and Uncle Jimi came over with coffee, lunch and dessert and helped me with the kids. I've never had an easier time prepping dinner or washing dishes!
Auntie Becky has come by for numerous visits.. the last one included an entire meal complete with dessert.. and prizes for Evie of course. They love their Auntie Becky.. and so do I :)
Like I even need to explain how and why I am so thankful for this woman. She is 1 in a million. Everything she does, says and feels, I am thankful for!
Our all time favorite Jersey family ordered dinner from our favorite pizza place and had it delivered after our last stint at Children's. We love you, Detura's! Even from miles away, we feel the love.
Our dearest friends Eric and Kerri sent us an incredibly generous gift card to Peapod, which you can do your food shopping online and have it delivered right to your house. This is going to come in especially handy when Jack goes in for surgery. You guys are amazing. xo
My mom's friend Diane sent her a note about how she prayed for Jack at the relic of St. Philomena.. and how she continues for pray for him and all of us. I was so moved by her thoughtfulness. This coin will be with Jack when he goes in for his surgery, and we will cherish it and keep it close to him forever.
I'm also blown away and touched by all the messages I've received of love and support from so many friends, family, coworkers, acquaintances and perfect strangers. This blog has been such an amazing tool to reach so many people.. and I am so touched that you all care enough to read about Jack and this incredible journey.
Next post will hopefully be in 2 weeks after another successful appointment with Dr. Ronai. Keep thinking of Jack! I will keep you posted.
xo Marissa
Some pictures...
No comments:
Post a Comment