Thursday, April 9, 2015

Quick update of the morning so far...

Jack woke up a very happy wee man today, with big stretches and smiles..


Jack has been weened off of his oxygen and they are keeping an eye on his o2 sats to make sure they don't dip back down. He has been hanging in the high 70's, low 80's all day which is great for him!

The unofficial official plan is for Jack to go home today or tomorrow with an o2 tank for the next month so we can fatten him up as much as possible for surgery.. bigger is better. I'm still waiting to talk to Dr. Ronai to get official word, but they are already working on getting a tank sent to the house. So Jack and I will be getting sprung sooner than we thought!

It's been really tough since we got here. We came in thinking we'd be here over night, which turned into Friday, then indefinite with surgery on the horizon, then after the weekend and now as early as today or tomorrow. I feel like a yoyo.. I'm up, I'm down. We were getting surgery and I was scared and unprepared, now we aren't and half of me wants to get it over with and the other half is happy to get to go home.

I just spoke with one of his nurses and she said it sounds like they may just want him to wear it when he is sleeping and also to just have a tank home incase he ever needed it at any other point. 

That's all I've got for now. Thank you for all the love you've been sending our way!! Keep you all posted!

xo Marissa


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