Seriously.. what fresh hell is THIS? I knew that blood thinners were intense, but I was not prepared for what life is going to be like for t...

When I say I’m done and ready to go home, I don’t think anyone really knows what I mean. “Go home for the night and get a good nights slee...

We are 3 days post Fontan. It has not been easy. We have been struggling with pain management. There have been lots of tears and very few sm...

Last night was kind of awful. Jack's oxygen saturation was low and his blood pressure was high. So they decided to put him on oxygen.. W...

For once, we didn't have a bright and early start to the day. Since we didn't have to check in with the cardiac Cath unit until 11, ...

Today was pre op day. Our check in time was 7:30 so it was a bright and early start for all of us. The morning went by pretty smoothl...

We have once again received a piece of mystery mail for Jack -- a birthday card with no return address and a hundred dollar bill. Wel...