The Fontan Wringer

We are 3 days post Fontan. It has not been easy. We have been struggling with pain management. There have been lots of tears and very few smiles from our typically happy go lucky boy. He has been  watched by countless nurses today because his blood pressure has been shooting up and his O2 has been dipping low. Our boy seems to be keeping everyone on their toes, but these doctors, nurses and clinical assistants have been nothing but amazing at what they do. They are trying to figure out why his numbers are all over the place.. hopefully we will have an answer (or at least have somethings rules out) tomorrow.

A couple other things:

1) the diaphragm on one side of Jack’s chest is higher than the other preventing the lung on that side from expanding as much as the other. His cardiologist said sometimes when they are digging around during surgery, they can bruise and paralyze the diaphragm. Which may be the case for Jack.

2) There was talk about oxy just not working for Jack and that he may have to go back to morphine. They gave him a one time dose but ultimately decided to up his oxy in dosage and frequency to see how he does.

3) So many friends and family came out to see Jack here with lots of prizes in hand and I just wanted to take a minute to thank you all..

-Tabby and Tim, thank you for taking care of our girl and treating her to what was probably one of her favorite sleepovers of all time. And for showering her with gifts and for the intimate cat piano for Jack. I can’t wait to hear him play it.

-Eric and Kerri, thank you so much for bringing jack prizes, for the dinner and drinks but most importantly your company and all your love and support. We love you.

- Uncle Ricky and Uncle Nathan, thank you for all of Jack’s prizes and for the matching cat pillow and Johnny. He absolutely loves them.

- John Andrea and Adrianna, thank you so much for your company and patience today when jack was having a tough time. You made jacks day with those paw patrol mashems! It was the first time I got the hint of a smile from him and it was magic.

-And to my dream team: Jeremy and Mom. I would probably be curled up on a floor somewhere if it weren’t for you guys. There’s no way for me to thank you for all you’ve done to support me during all of this.  Team work truly does make the dream work.

Please continue to keep Jack in your thoughts and prayers... and if you have those extra good vibes just laying around, send those his way too. He could use them after today.