The Synagis saga continues.
Jack was suppose to go get this months round of Synagis today. Jermey got a phone call from the pediatrician saying they had to cancel because they hadn't received the dose from our health insurances specialty pharmacy. Care to venture a guess as to why? The insurance company will not send it out until it's paid.. In full. Let that sink in.
Jeremy has spent the better part of his days lately on the phone trying to sort this whole thing out.
Our health care advocate told him to contact a company called my access 360 and explain Jack's situation. They instantly sent him a prepaid account with money in it to put towards the shot (which is great but tricky because our health insurance company wants it in full. )
The head nurse at our pediatricians office was so helpful. She contacted insurance company and asked why they didn't call to notify them about not sending the dose for the month and they informed her there was "a copayment issue" to which she asked again why they didn't contact her so she could've helped us find assistance or better yet why didn't they refer us to any programs.. They had no answer for her and told her in so many words that's not their job and they aren't at liberty to discuss it with her.
The nurse told Jeremy to get in touch with the manufacturer, Astraseneca and explain to them what our situation was. So he did and after contacting the pediatrician and signing some paperwork, they are sending a "limited supply" so that he can get his shot on time.
Jeremy also signed a paper allowing the nurse to speak on our behalf with another assistance program for even more help.
So my heroes of the day are the amazing head nurse at our pediatricians office and Jeremy, aka superdad! He has been working so hard and calling any and every one he can to make sure our son gets what he needs. And he detests calling anyone and being on the phone.. So I am so proud of him.
Finally, the good news... After all this hoopla with the insurance company and trying to get Jack his shot, Jeremy found out that BCH and our insurance company managed to come to an agreement and Children's will remain IN our network! So we will be able to stay at Children's with the cardiology team we know and love! They have been taking care of Jack since before he was even born. The thought of having to move his care to a different hospital with a different team would've killed me. We are just overjoyed and are so relieved.
So now we just have to continue to work on he synagis. I'll be sure to keep you posted about that circus.
Celebrating our little victory
Shake Shake
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